How to help solve a problem?
AWARENESS
Generate attention
Attracting attention is an essential part of the job. Many people do not know about the existence of "rare diseases" and which consequences arise for those affected, but also which opportunities arise from an intensive examination of this and similar diseases.
Because early detection can prolong life, even save it and, as a result, relieve the health system, from which everyone benefits. Understanding and, in the future, healing of this disease can only be achieved through knowledge and methods that can also help in many other areas.
But all of this requires the first steps - informing, involving and motivating to get involved with the topic. This is only possible with a good and broad media and communication strategy.
FUNDING
Money makes the world go round
Ultimately, it's about resources. At the beginning, the focus is more on immaterial aid, but it is always about financing the overarching goal - a center of excellence - to reach.
In addition, the entire funding is presented in an open and comprehensible manner on this website.
The goals to be achieved, the necessary financial resources, the milestones, the status of what has been achieved - all of this is made clear and transparent at all times.
RESEARCH
Understand & find solutions
Building sustainable research - certainly the longest way - which begins with the vision and goal of building something that can help many people.
A center of excellence that has its center in Germany, but operates with a global spirit. This is the only way to solve such a topic in the long term and create added value for thousands of people.
Step by step
